If you haven’t seen the video of the Children’s Hospital at Dartmouth (CHaD) patients lip-syncing Katie Perry’s “Roar” it’s worth your time to watch it. (Not sure how you could have missed it—it has over a million views on YouTube!)
Every time I watch it—or visit CHaD–I am reminded how fortunate I am that I was blessed with a full life, children, grandchildren, career, a long and happy marriage, before my cancer diagnosis. Not all of the kids who are admitted to CHaD have that to look forward to.
Our niece, Meghan Richardson, is one of the “stars” of the video. She has cystic fibrosis and gets admitted to “Hotel” CHaD a couple of times a year when her lung functions drop. She’s been going there sixteen years now—they actually saved her life when she was four months old. When we visit Meghan at CHaD, we see how much of a second home it is to her. Over the years she’s taken more control of her medical care—and I imagine there are times some of the staff wish she were less assertive, that she “roared” less.
I wish I had known how to roar over a year ago when I was first experiencing symptoms of my adrenal cancer. Granted, my treatment and outcome may not have been any different if I had been diagnosed three months earlier but I might not have felt so powerless during the time while I waited for my diagnosis. It helps to be reminded that I still need to be in charge of my health care.
Yesterday was my quarterly CT scan. The preliminary reading is that everything is stable. And now we can breathe. For another three months.
After my appointment we were going to hang around for the filming of the Piers Morgan/CNN interview with Meghan, Maggie, and Holly from the video but it wasn’t scheduled until 8:30 p.m. and we decided that watching the interview from the couch in our jammies was more appealing. Not to mention that we would be able to see the Red Sox play (WIN!!) the first game of the World Series.
There are no coincidences, we like to say around here. (Frannie, my nurse yesterday in the oncology department, happens to be in the video!) Meghan would not have been in that video if her lung functions hadn’t dropped. It was filmed on the first day she was admitted to CHaD but you would never know she was as sick as she was. That’s the spirit of the patients at CHaD—and their parents, health care providers, and staff. They are amazing. Inspiring.