Tag Archives: Thanksgiving

Two years and clear!!!

Adrenal Cancer, Cancer, Family, My Novel-It Takes A Village Store, Surgery, Writing November 21, 2014 Comments: 8

By Karen Whalen

Yesterday was my CT scan at DHMC marking my two-year anniversary from surgery for adrenal cortical cancer (ACC). It was clear–NO EVIDENCE OF DISEASE! Exactly what I had hoped for and expected but, hey, you never know. The cancer can return at any time.

CT Scan Cocktail at DHMC

CT Scan Cocktail at DHMC

The visit would have been uneventful except for my allergic reaction to the contrast material injected during the CT scan. At the end of the scan, the radiology technician noticed that I was rubbing my lips and, when I admitted I was experiencing an itchy mouth and swollen lips, I was suddenly surrounded by several other medical professionals and whisked off to recovery. I immediately was given a Benadryl pill followed by an IV of prednisone. After over an hour in the recovery room, I was released to a scrumptious turkey dinner in the hospital cafeteria–the reason I like my appointments scheduled on Thursday!

Tyler at the Top of the Rock

Tyler at the Top of the Rock

Today is my oldest grandson’s birthday. Tyler turns thirteen today! We now have a teenager in the family. Joy and Paul are in for some interesting and exciting (and challenging??) times, if memory serves me correctly. (And that’s not something I can rely on these days.)

My niece, Sammie, is celebrating her birthday today as well. In my family, we have multiple overlapping birthdays.

The 50,000 word goal for NaNoWriMo is getting more and more elusive. I made it to 15,000 words after my 3,500 word marathon on Tuesday. With 35,000 words and only ten days left, including today, I will need to pump out another 3,500 words each day. Unfortunately, Thanksgiving falls in that time period, which we will be spending in Connecticut. I’d like to know who thought November was the right time for this awesome event? Wouldn’t January, with cold, snow, and thirty-one days have been a better choice? The good news is that no matter how many more words I am able to add during November, I have a good start on what I think may become a trilogy set in the town of Woodbury. It’s always good to have goals…..

I scanned the December issue of the Better Homes and Gardens magazine this morning. Big mistake. All of the holiday decorating, cooking, and entertaining in that one issue made me feel totally inadequate. Unless you want a reason to be depressed–don’t waste your time looking at any of the holiday magazines. Whatever you usually do for the holidays, I suggest you cut back and carve out more time for simple celebrations with your family. Less stress–more memories. And who doesn’t want that?

Catching my breath before Thanksgiving

Family, My Novel-It Takes A Village Store, Travel, Writing Group November 19, 2014 Comments: 2

It’s been a hectic–but fantastic–week! The agony of turning 60 was diminished by the almost weeklong celebration with my friends and family. I feel so loved!!

The day of my birthday, a group of friends/former colleagues from Wells River Savings Bank hosted a turkey luncheon for me. Thank you to Katie for opening your home to us!! Thank you to Barb, Gail, Gayle, Judy, Katie, Midge, and Winifred for their culinary expertise and for giving up part of their holiday to spend it with me (and for including my mother)! We missed you, Kim!

Relaxing at the Spa

Relaxing at the Spa

And Barb, it’s OK that you spilled the beans about my husband’s birthday surprise–a trip to the spa at the Omni Mount Washington Hotel. I highly recommend the amazing hot stone massage. And the facial took years off my face, at least temporarily. We ended the evening with a yummy dinner at Stickney’s restaurant at the hotel.

At Thursday night’s writing group we discussed starting a group blog. Can’t wait to see how we do–I have a hard enough time keeping up with my own. But that one would involve a commitment, a deadline, and I respond well to those.

Saturday morning we celebrated Steve’s mother’s 87th birthday with his family at Grafton County Nursing Home. Although Nanny has Alzheimer’s and is barely able to talk, she entertained us with her wide range of expressions. We were impressed when she fed herself a spoon of ice cream. Enough said…..

After the celebration we traveled to Farmington, CT, to stay with Joy and family. Jesse, Elise, and Sheffield arrived that evening. In honor of my birthday, they had made me a Jello poke cake (the same cake I made for Steve’s mother that morning)! It’s a Whalen family tradition–tasty and easy.

Radio City Music Hall

Radio City Music Hall

Sunday morning we were all up early to board the train in Stamford for our day in New York City. First stop was ToysRUs where we rode the ferris wheel and checked out the toys, naturally. Next we walked to Radio City Music Hall for the Rockettes Christmas show. WOW!! At the Top of the Rock the adults delighted in the view of the city while the kids enjoyed the room with lights.

The Top of the Rock

The Top of the Rock

We headed home Monday morning in the pouring rain, concerned that we would hit snow or, even worse, freezing rain but we didn’t. Yankee Candle in South Deerfield, MA, was the last stop of our trip. Sheffield and Elise particularly enjoyed the Christmas section. And so did I! I was dismayed to not be able to work on my NaNoWriMo novel in the car due to a dead laptop battery. Nor did I have the notebook I always carry with me.

Steve dropped me off at my final memoir writing class. I don’t think I’ll write a memoir about my own life but I would like to write one of my mother’s. Guess I better get going on it. I highly recommend the novel “Little Island” by Katharine Britton, our instructor. At this last class she provided information about getting published. Good thing I am writing because I want to and not because I hope to get published!!

I am spending the few days until our return trip to CT for Thanksgiving trying to catch up on my NaNoWriMo (and my rest!!). I’m so far behind that it will take a major commitment on my part to hit my 50,000 words. Actually, it is going to take a miracle. I believe–do you?

Gratitude

Adrenal Cancer, Cancer, Family, Surgery, Writing November 27, 2013 Comments: 7

I can’t think of a better time than the day before Thanksgiving (I’ll be a little busy cooking on the actual day to post) to acknowledge all of the people I am grateful for, can you? It’s been quite a year—I spent Thanksgiving in the hospital last year and I don’t think I was even able to eat anything that day. Unfortunately my family was subjected to eating in the hospital cafeteria (though the food is pretty good there).

Of course, family comes first. My husband’s last day of work is today. Never would have thought I would be retired before him, though only by a few months; after all, he is four years older than I am! I’ve put him through a lot this past year but I can’t remember him complaining once. He’s my hero, my rock. My three daughters have all managed to fit time into their busy schedules to keep track of and support me and if they can’t be here, they and their families keep in touch via FaceTime. My mother’s nightly 7 p.m. phone calls have kept us connected—she keeps me posted on what she ate for lunch at the Senior Center! My extended family has all been there for me as well (sisters, in-laws).

How could I have managed without all of my friends this past year? They were here for me before my surgery and during my six weeks of recovery after the surgery–and they haven’t given up on me. My “work” friends even surprised me with a turkey dinner (a craving related to being deprived of a Thanksgiving dinner last year) to celebrate my birthday this month!

My doctors, Dr. Seigne, Dr. Ernstoff, Dr. BelBruno, Dr. Homan, and all of the many others who made my surgery and stay at DHMC a success (fingers crossed!) are priceless. I’m so appreciative of the wisdom, albeit it remotely, of Dr. Hammer at the University of Michigan, as well as the willingness of my doctors here to value it.

My writing group has helped me focus on what’s important to me. No paycheck comes from the time I invest in writing, and yet it’s the hardest work I’ve ever done in my life. It’s what I do just for myself, it’s my “dream.” Not come true by any means…especially since I will NOT succeed at NaNoWriMo this year.

Mainly I’m grateful that I am still alive, and cancer-free, after one year, and here to enjoy cooking another Thanksgiving dinner, surrounded by family and friends and food.

Betsy Ross Reincarnated??

Adrenal Cancer, Cancer, Mitotane, Surgery, Writing November 21, 2013 Leave a comment

One year ago today was a momentous day for me–I was operated on for adrenal cortical cancer. My CT scan this October was stable. I met with my oncologist yesterday and my endocrinologist on Monday and everything appears to be fine. I guess that means I am one year with no evidence of disease (NED)!

The only issue is that damn mitotane that I am taking to try and keep any possible microscopic cancer cells from growing. It’s nasty stuff! And the long-term side effects are of major concern. But I’ve reconciled myself to the mitotane being the lesser of two evils.

Unfortunately, I don’t really know if the mitotane is working. It is effective in only 20-30% of those who subject themselves to it. Would I still be NED at this point without taking the mitotane? If only there were more than 350-500 new ACC patients a year, if only ACC were not an ultra-rare cancer…yet given all that, there is ongoing research for new treatments, for which I am extremely grateful.

And with Thanksgiving a week from today, it’s a good time to think about everything I am thankful for. (Why wait for a holiday to do that?) More on that to come….

Betsy Ross

Betsy Ross

To celebrate my one-year anniversary, I have spent the morning doing something just for me. I submitted my initial contact to the Daughters of the American Revolution. My fourth great-grandfather, Edmund Welch, served in the Revolutionary War. He was in the battle of Lexington/Concord on April 19, 1775, the battle that started the war, and served for various periods of time after that. I know this not from ancestry.com but from a genealogy book that has been in the family for years. This is a fact I seem to have missed all of these years yet I have always felt an affinity for the Revolutionary War (even thinking at one point that I was Betsy Ross reincarnated—really!). I know the process for being accepted into the DAR requires a lot of work so it may take me some time to complete it. I am hopeful that the fact that the genealogy book is on file in the library of the Daughters of the American Revolution in Washington, D.C. will expedite the process.

Update on NaNoWriMo: I don’t think I will hit 50,000 words by the end of the month as I am currently at just under 10,000. I have no explanation or excuses unless laziness qualifies….

Blue sky and sunshine–the pressure

Cancer, My Novel- Anne, Writing Group August 15, 2013 Comments: 5

Started out thinking we would go to Bar Harbor for the weekend then realized, after finding very few rooms available unless we’re willing to shell out $800 for two nights, that this would be a good time to take the Martha’s Vineyard/Nantucket trip we’ve been pondering. We love Martha’s Vineyard and have taken several day trips there—and when I say day trips, I mean home to Martha’s Vineyard and back in one day. One long day…It’s so much harder for me to do that now.

Last Saturday we did Ogunquit/Rye and I was confined to the couch for a few days after that so we decided our next trip will include an overnight or two at a motel. Now we’ve decided that we’ve been to Martha’s Vineyard enough (that could never be true for me but for this excursion we’ll go with that). Nantucket would be awesome (as day trippers) since we’ve never been there and it is on my bucket list. The internet is great—I can book the ferry reservations within minutes but the room?? Too many choices on the Cape…and yet so few that are available for one night. And then I need to factor in the potential traffic nightmare. Maybe we’ll just stay home and chill….

Those two moles I had scraped from my back? Luckily they were just atypical and only one needs further “surgery.” The appointment with the surgeon did get cancelled…..so now I get to wait until the end of November for the removal of the mole. Must be a history of melanoma doesn’t create a sense of urgency. One more thing to be thankful for, I suppose. I just realized it is scheduled for one year and one day after my adrenal cancer surgery—at least Thanksgiving is the following week this year. And Steve, you are on notice that we are hosting it. Just in case next year we can’t….

Major accomplishment—it’s now two weeks in a row that I have submitted two chapters of Anne to my writing group. In order to do that, I feel as though I have spent every free minute at my laptop. Of course I haven’t. I did manage to squeeze in that trip to Maine and two days on the couch not feeling well—and two days on the couch not feeling not well! I’m aiming for another submission this coming week—at this rate I’ll have the second draft completed in 2013. That shouldn’t even be seen as an accomplishment considering I am “retired.” But what happens to my book when Steve retires and we head to Arizona—and I’m no longer (temporarily) an active participant in my writing group?? We really need to get Facetime or Skype working.

Just let the cat out and realized the sky is blue and the sun is shining. What shall I do?? Probably getting dressed would be a good start. The pressure….

Turkey Dreams

Mitotane, Writing July 1, 2013 Leave a comment

Last night my first eight “testing the waters” blog entries were critiqued by my writing group. Their comments were encouraging but I can’t help wondering if it is sympathy due to my cancer… self-doubt always trumps being able to graciously accept compliments. John distributed samples of blog postings, which I read when I got home. Some were truly atrocious. I am confident I can produce something worth reading yet will my blog become my focus, taking time away from my “real” writing? I feel (hope?) that the blog will more likely prime the pump, dragging me to my laptop, away from my beloved HGTV. Yet this morning I am struggling with this post and only CNN is on with the volume down to 1.

thanksgivingdinner

I awoke this morning to a dream of a turkey dinner being prepared for me, Thanksgiving I think, and the cook was heating up the package of squash that I have kept secured in my freezer for months, not for a turkey dinner but in case I wanted to make squash soup.

 

Who am I kidding?

I have prepared so few meals since my surgery that it is more likely the squash will be heated up as is and eaten with a grinder from Village Pizza than that it will be transformed into an appetizing soup. I am certain the dream arose from our discussion last night about my post pitying my family for having to eat Thanksgiving dinner in the hospital cafeteria. It’s too early in the morning to be talking turkey—I haven’t had my raisin toast yet or my yummy mitotane/hydrocortisone/ondansetron/metoprolol/pantoprazole/loratidine dessert! Remember, magic resides in those pills.

Dow has dropped 353 points over the past two days. Ouch. Now that I am retired this means a heck of a lot more than it did when I was still working.

James Gandolfini dropped dead in Italy yesterday. Apparent heart attack. I, at least, am forewarned. A young woman on the ACC Compassion site has died. She was forewarned. I hope she was able to take advantage of her remaining time to squeeze in a full life, albeit condensed. Not likely if she was undergoing treatment.

Quality of life and all that.

One In A Million

Cancer, Mitotane, Surgery, Writing July 1, 2013 Comments: 3

photo (1)

That’s me.

No, I didn’t win the lottery.

I have Stage 2 adrenal cortical carcinoma (ACC), an ultra rare, aggressive cancer with a grim prognosis that strikes .5 to two people out of a million annually. This is one time when you don’t want to feel special. I had surgery the day before Thanksgiving 2012 to remove my right adrenal gland, kidney, a piece of my liver, and resected my inferior vena cava (what in the world is that, I wondered. It’s the artery that returns the blood from my legs to my heart. Who knew?)

Not only did I miss Thanksgiving dinner, which I would normally have hosted at my house, but a Thanksgiving day trip to Atlantis in the Bahamas with my middle daughter and her family. We did make it there the end of March 2013 and it was a wonderful trip. Funny how when I was recuperated and able to eat normal food I craved turkey dinners, whether at a local restaurant or in frozen dinners due I am certain to being deprived of a real Thanksgiving dinner. I am not certain what I did eat for Thanksgiving dinner on the day following my surgery as the day of and most of the day after have disappeared from my memory. A good thing, I am told by my family who were unlucky enough to be there with me and forced to endure their Thanksgiving dinner in the hospital cafeteria. I no longer crave the turkey dinners as my cravings change constantly—what I absolutely had to eat a short while ago I no longer desire.

Except for carbs.

For the last few years my husband and I have tried to follow the South Beach diet principles and now all I want to eat are things off limits on South Beach: all carbs, including bagels, cinnamon raisin bread, pumpernickel, pasta, even the occasional toaster streudel.

Vegetables? No thank you.

It sounds as though all that ACC has done is impacted my eating habits. Nothing could be further from the truth. I am lucky in that my cancer is stage 2, even though the prognosis is that I have a 51% chance of living five years. I had several options for treatment, one of which was to do nothing, just wait for the results of my CT scans every three months. That didn’t really thrill me.

I am used to taking action, to being in control.

A remote second opinion from the University of Michigan recommended Mitotane, a DDT derivative, taken in pill form daily for three years. Although my oncologist at Dartmouth Hitchcock Medical Center did not support my decision, I went with the U of M recommendation. Rumor has it that only 20-30% of ACC patients benefit from Mitotane—how am I to know if I am one of those? Clean CT scans only prove that the cancer has not returned, not that the Mitotane has kept it from returning. Mitotane has extreme side effects, which prevents many patients (are there really many people making this decision?) from taking the drug. Because it also kills your other adrenal gland, you need to take hydrocortisone, which I have difficulty tolerating even though it does fuel my appetite and apparently my energy level.

The biggest decision of my life was to retire at the age of 58. (Sorry, Steve, marrying you wasn’t really a decision, it was a given.)

On the day I returned to work from medical leave after my surgery I gave my notice. That wasn’t part of our plan, just like cancer wasn’t. Steve was supposed to retire this year at 63 and I was to continue working until I was old enough to draw Social Security. So much for plans. But who wants to keep working, no matter how rewarding, when death looms on the horizon? Sure, we’re all going to die at some point but by the time you reach my age you assume you’ve got another 30 years ahead of you, especially when your mother is still alive and kicking—and I do mean kicking—at the age of 85. And I thought I could produce a lot of novels in those 30 years.

Now I am hoping just to finish the writings that I’ve already started.

Yes, writing is my dream and what better time to try to realize your dreams than when death is no longer just a concept but a very real possibility?

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