Category Archives: Writing

It wouldn’t be Christmas without a real tree

Family, HGTV/DIY/Design, My Novel - Claire, Writing December 1, 2013 Leave a comment

28189-beautiful-christmas-tree[1] December 1. Steve’s official start of retirement. A day to celebrate. Under normal circumstances, I would be jealous, looking forward to another four or more years of work while he stayed home, completing his honey do list and puttering around the house. Nothing normal about our current situation. We’re both retired, home together, 24/7.

We have only one vehicle now. Already we are missing the company truck. Can’t just run and get a Christmas tree, throw it in the back of the truck. This year we borrowed Chris’ truck and took Elise with us to Windy Ridge Orchard to cut our tree. I’ve thought about buying a nice artificial tree (we put a cheap one in the gazebo that caused a few arguments as it was being assembled) but I can’t quite make myself do it. I like real ones. It wouldn’t be Christmas without a real tree.

Last year Steve and Sheffield bought an already cut one while I lay on the couch recovering from my surgery. It was not what you would call a pretty tree although he claimed it was the best one in the lot. I recall that Steve and the grandkids decorated it. I didn’t much care what it looked like. But I definitely cared that we had one. It meant that everything was normal. Even though it wasn’t.

This year everything is pretty close to normal. Except we are preparing for our trip to Arizona and packing up the house so that our contractor can renovate the kitchen and install new tile in the mud room. And I get to tear up the old tile! So excited! Our contractor even left me a real tool to do it with—a mini jackhammer. I can’t wait to get started. I’ll probably hate it or, more likely, not be able to do it, and Steve will have to take over. And all of those hours spent watching HGTV will be wasted.

Sort of like writing. It’s something I’ve wanted to do for so long and now that I have the time to do it I realize how much work it is. (I certainly can’t delegate it to Steve.) So it doesn’t get done. That’s why I didn’t “win” NaNoWriMo (yesterday was the deadline and I never got beyond 11,000 words). But I did get a good start on a novel that I like and that I hope to complete – “Claire.” Eventually. Even with Steve hanging around the house…….

Gratitude

Adrenal Cancer, Cancer, Family, Surgery, Writing November 27, 2013 Comments: 7

I can’t think of a better time than the day before Thanksgiving (I’ll be a little busy cooking on the actual day to post) to acknowledge all of the people I am grateful for, can you? It’s been quite a year—I spent Thanksgiving in the hospital last year and I don’t think I was even able to eat anything that day. Unfortunately my family was subjected to eating in the hospital cafeteria (though the food is pretty good there).

Of course, family comes first. My husband’s last day of work is today. Never would have thought I would be retired before him, though only by a few months; after all, he is four years older than I am! I’ve put him through a lot this past year but I can’t remember him complaining once. He’s my hero, my rock. My three daughters have all managed to fit time into their busy schedules to keep track of and support me and if they can’t be here, they and their families keep in touch via FaceTime. My mother’s nightly 7 p.m. phone calls have kept us connected—she keeps me posted on what she ate for lunch at the Senior Center! My extended family has all been there for me as well (sisters, in-laws).

How could I have managed without all of my friends this past year? They were here for me before my surgery and during my six weeks of recovery after the surgery–and they haven’t given up on me. My “work” friends even surprised me with a turkey dinner (a craving related to being deprived of a Thanksgiving dinner last year) to celebrate my birthday this month!

My doctors, Dr. Seigne, Dr. Ernstoff, Dr. BelBruno, Dr. Homan, and all of the many others who made my surgery and stay at DHMC a success (fingers crossed!) are priceless. I’m so appreciative of the wisdom, albeit it remotely, of Dr. Hammer at the University of Michigan, as well as the willingness of my doctors here to value it.

My writing group has helped me focus on what’s important to me. No paycheck comes from the time I invest in writing, and yet it’s the hardest work I’ve ever done in my life. It’s what I do just for myself, it’s my “dream.” Not come true by any means…especially since I will NOT succeed at NaNoWriMo this year.

Mainly I’m grateful that I am still alive, and cancer-free, after one year, and here to enjoy cooking another Thanksgiving dinner, surrounded by family and friends and food.

Betsy Ross Reincarnated??

Adrenal Cancer, Cancer, Mitotane, Surgery, Writing November 21, 2013 Leave a comment

One year ago today was a momentous day for me–I was operated on for adrenal cortical cancer. My CT scan this October was stable. I met with my oncologist yesterday and my endocrinologist on Monday and everything appears to be fine. I guess that means I am one year with no evidence of disease (NED)!

The only issue is that damn mitotane that I am taking to try and keep any possible microscopic cancer cells from growing. It’s nasty stuff! And the long-term side effects are of major concern. But I’ve reconciled myself to the mitotane being the lesser of two evils.

Unfortunately, I don’t really know if the mitotane is working. It is effective in only 20-30% of those who subject themselves to it. Would I still be NED at this point without taking the mitotane? If only there were more than 350-500 new ACC patients a year, if only ACC were not an ultra-rare cancer…yet given all that, there is ongoing research for new treatments, for which I am extremely grateful.

And with Thanksgiving a week from today, it’s a good time to think about everything I am thankful for. (Why wait for a holiday to do that?) More on that to come….

Betsy Ross

Betsy Ross

To celebrate my one-year anniversary, I have spent the morning doing something just for me. I submitted my initial contact to the Daughters of the American Revolution. My fourth great-grandfather, Edmund Welch, served in the Revolutionary War. He was in the battle of Lexington/Concord on April 19, 1775, the battle that started the war, and served for various periods of time after that. I know this not from ancestry.com but from a genealogy book that has been in the family for years. This is a fact I seem to have missed all of these years yet I have always felt an affinity for the Revolutionary War (even thinking at one point that I was Betsy Ross reincarnated—really!). I know the process for being accepted into the DAR requires a lot of work so it may take me some time to complete it. I am hopeful that the fact that the genealogy book is on file in the library of the Daughters of the American Revolution in Washington, D.C. will expedite the process.

Update on NaNoWriMo: I don’t think I will hit 50,000 words by the end of the month as I am currently at just under 10,000. I have no explanation or excuses unless laziness qualifies….

Thank goodness for NaNoWriMo

Adrenal Cancer, Cancer, My Novel- Anne, Writing Group October 26, 2013 1 Comment
My "almost" done quilt

My “almost” done quilt

Gearing up for NaNoWriMo—National Novel Writing Month—when I am committed to writing the first draft of a 50,000 word novel in 30 days. Starting November 1, less than a week from today!! I did it once, in 2011, and that was while I was working full-time.

Shouldn’t be so hard to write about 1,667 words a day now that I’m retired, right? Unfortunately, I’ve turned into one of those retired people who can’t imagine how I even managed to fit work into my busy schedule….lunch with the ladies from my writing group….Pilates once a week and yoga sometimes…..submissions for my writing group…..noontime walks with Judy….How did I do all those things and work?

Let’s see—I do more laundry than I used to….I vacuumed the other day….I take more naps….and, um, has much of anything else changed?

I am writing this blog—that’s new, something I committed to after my surgery. I took a quilting class at Seams Sew Easy Fabric Shoppe and am sort of close to having a finished product. (Thank you, Chrissy Steeves, for your patience!! I’m not done yet…) I spend more time at DHMC at doctors’ appointments and I go with my mother and Steve to their appointments. And I’ve made more of an effort to do things for friends who could use some help. (Mainly I make batches of turkey chili.)

I try really hard to write more. I was working on my umpteenth revision of “Anne,” after vowing to complete that version before the start of NaNoWriMo. Well, that never happened. Not even close. But I worked at it, every day, which was good preparation for NaNoWriMo. Then our wonderful vacation to Arizona disrupted the flow. Totally worth it, however.

The big change is in my attitude, in my approach to the daily tedium of life. I’m less hyper, more relaxed, as others have felt free to point out. Yet sometimes I wonder if I shouldn’t be the opposite. With my adrenal cancer diagnosis and the remote chance that I won’t live to be 90 years old, shouldn’t I be more amped, more energized, more productive? Shouldn’t I try to cram as much living into every day, every hour, every second? Nah, I think I’ll just take it as it comes, do what I feel like when I feel like it.

Thank goodness for NaNoWriMo.

It’s always nice to come home

Adrenal Cancer, Cancer, Family, Writing October 16, 2013 Comments: 4
I love this place even though I am a rock 'n roll kind of girl!

I love this place even though I am a rock ‘n roll kind of girl!

Just spent ten days in Arizona on vacation with our daughter Joy and her family. I thought I would find time to work on my blog and on my book, to think about adrenal cancer. I didn’t end up doing any of that. OK—I did spend some time thinking about ACC, how could I not? It’s my life now, even in my Facebook news feeds. Listened to a podcast from MD Anderson of a Stage 4 ACC survivor on the trip home from Boston. Encouraging!

We were busy all of the time and I loved every minute of it. Especially the constant warm temperatures (90’s!), blue skies, and sunshine, which I blame on preventing me from sleeping. That would have been a good time to write but I didn’t–blame it on Ken Follet’s long book, “World Without End.” I can only dream about writing a book that keeps someone up until 2 a.m.

Vacation with the grandkids is always go, go, go. Football practice. Football games. Shopped at the malls, so many to choose from, so close, not like at home. Celebrated Joy’s birthday. Skipbo marathon with Haley. Yoga with Joy .

Breakfast at Liberty Market with Haley followed by the splashpad while Joy taught a class at Gilbert Yoga. Lunch at Queen Creek Olive Mill. Dinner at San Tan Flat—a blast and I indulged in one of their awesome margaritas. Not all on the same day–but we do tend to eat out a lot while we are on vacation!

Went on a trail ride at MacDonald’s Ranch in Scottsdale with rattle snakes, a rabbit, a coyote, and a runaway horse—Haley’s, not mine! My horse, Holiday, and I were a perfect match. Nice and easy……My buddy, Holiday.

Swam in the pool fully clothed with Haley. Hiked a new trail (to us) in the San Tan Mountains. Toured the Phoenix Zoo.

Met with Dave and Toni Bellin, travel agents (yes–they do still exist!) at Sunrunner Travel to plan our trip to Hawaii. (So exciting!)

Finally arrived in Boston after a disappointing boarding of our flight in Baltimore on Southwest. After several elevator rides elicited the assistance of a Massport employee to find our truck in the Logan parking lot. Rain and 47 degrees when we finally headed out onto I-93.

Vacations are great but it’s always nice to come home.

I’m a winner!!

Adrenal Cancer, Cancer, My Novel- Anne, Writing, Writing Group September 5, 2013 Leave a comment
NaNoWriMo Winner Certificate 2011

NaNoWriMo Winner Certificate 2011

It’s a great day to be alive even if it feels like summer is over and fall is on the horizon. Frost warnings tonight!

I spent the morning yesterday at the Cider House Café at Windy Ridge Orchard with three women from my writing group. I can’t think of a better way to spend a morning—except if the one member who is “not a morning person” had been there.

As I had already eaten a bagel, the scrumptious apple cinnamon pancakes and bacon counted as my lunch, along with a Cortland apple from the peck I purchased in the gift shop. A lifetime ago I worked with the husband of the woman running the register—actually I started the novel (“Anne”) I am still struggling with when we began working together in 1986. He died of cancer five years ago.

She said she is finally coming to grips with his death. I can see that when Steve looks at me. I know he is thinking, how am I going to live without you? I am fortunate, I am only Stage 2 (of an ultra-rare cancer, unfortunately). It doesn’t mean I can’t become Stage 4 overnight. Or that I remain NED (no evidence of disease) forever.

I didn’t know in October that I would have surgery for ACC in November. I was living for tomorrow. It’s a wakeup call to find out that tomorrow may not come. Now I try to live my life as though today, this very moment of today, is all that I can count on.

But the reality is that most people don’t live their lives that way. They live as though death only happens to other people.

The ability of the women in my writing group to motivate, energize, inspire, me is priceless. They make me want to sit in my seat and write until I can’t write any more. To hone my skills until I can’t write any better.

We decided to participate in the National Novel Writing Month event this November, where you write a 50,000 word book in 30 days. I participated a few years ago, something I admit I am proud of. We’re going to meet in a neutral place—meaning no distractions—to write together in November. It’s a lot of work to write, and a lot more to do NaNoWriMo, but together I have no doubt that we will be successful.

Paddle harder

Adrenal Cancer, Cancer, My Novel- Anne August 27, 2013 Leave a comment
No wind and we had the pond to ourselves. Serenity....only spoiled by the dead loon and its lonely mate.

No wind and we had the pond to ourselves. Serenity….only spoiled by the dead loon and its lonely mate.

Last week we had a gorgeous evening, especially by late summer standards. The air was still and warm. Blue sky. No humidity. (Why can’t we have this weather year round? Then we wouldn’t need to winter in Arizona I suppose. And some pathetic souls actually like it cold….)

Perfect for kayaking on Long Pond. As soon as Steve walked through the door from work, I was ready for him to load the kayaks while I filled the cooler.

Saw some ducks and what we believe was an immature bald eagle (we determined after we looked it up in the bird book when we returned home). In the middle of the pond we watched a lone loon dive and surface, careful to keep his distance from us. The week before we had seen his (or her) partner floating dead trapped in the tall grass along the edge. This week it was gone. We missed their haunting soulful cry.

No moose. It’s always the moose we hope to encounter and rarely do. And no sign of the heron we usually see. Could it possibly have migrated south already?

As we neared the launch on our return, I didn’t want the glorious evening to end. I just stopped paddling, drifted, prolonging my enjoyment. I could have stayed there until the sun set.

You can’t do that with life. Even if you don’t want it to end, it will. Paddle or drift, your life will end. It doesn’t take a genius to know that. When you have an illness as I do, you know it–you just don’t want to accept it.

As for my book—that I do want to end. I need to paddle harder. And faster. Give it my all. But it’s so hard. Like kayaking on Long Pond when there’s a head wind off Mount Moosilauke.

Blue sky and sunshine–the pressure

Cancer, My Novel- Anne, Writing Group August 15, 2013 Comments: 5

Started out thinking we would go to Bar Harbor for the weekend then realized, after finding very few rooms available unless we’re willing to shell out $800 for two nights, that this would be a good time to take the Martha’s Vineyard/Nantucket trip we’ve been pondering. We love Martha’s Vineyard and have taken several day trips there—and when I say day trips, I mean home to Martha’s Vineyard and back in one day. One long day…It’s so much harder for me to do that now.

Last Saturday we did Ogunquit/Rye and I was confined to the couch for a few days after that so we decided our next trip will include an overnight or two at a motel. Now we’ve decided that we’ve been to Martha’s Vineyard enough (that could never be true for me but for this excursion we’ll go with that). Nantucket would be awesome (as day trippers) since we’ve never been there and it is on my bucket list. The internet is great—I can book the ferry reservations within minutes but the room?? Too many choices on the Cape…and yet so few that are available for one night. And then I need to factor in the potential traffic nightmare. Maybe we’ll just stay home and chill….

Those two moles I had scraped from my back? Luckily they were just atypical and only one needs further “surgery.” The appointment with the surgeon did get cancelled…..so now I get to wait until the end of November for the removal of the mole. Must be a history of melanoma doesn’t create a sense of urgency. One more thing to be thankful for, I suppose. I just realized it is scheduled for one year and one day after my adrenal cancer surgery—at least Thanksgiving is the following week this year. And Steve, you are on notice that we are hosting it. Just in case next year we can’t….

Major accomplishment—it’s now two weeks in a row that I have submitted two chapters of Anne to my writing group. In order to do that, I feel as though I have spent every free minute at my laptop. Of course I haven’t. I did manage to squeeze in that trip to Maine and two days on the couch not feeling well—and two days on the couch not feeling not well! I’m aiming for another submission this coming week—at this rate I’ll have the second draft completed in 2013. That shouldn’t even be seen as an accomplishment considering I am “retired.” But what happens to my book when Steve retires and we head to Arizona—and I’m no longer (temporarily) an active participant in my writing group?? We really need to get Facetime or Skype working.

Just let the cat out and realized the sky is blue and the sun is shining. What shall I do?? Probably getting dressed would be a good start. The pressure….

Are 50 t-shirts enough?

Cancer, Family, HGTV/DIY/Design, Writing, Writing Group August 8, 2013 1 Comment

As Joy has rented out her cabin and my DIY fun there ended with decorating the porch with a tablecloth and vase on the table and new cushions on the (purported family heirloom) rockers, I am turning my focus to Jesse’s house. I feel so fortunate to have the time (and hopefully permission) to help her with this project.

My entire day is a blank slate looming in front of me (when I’m not visiting DHMC) with time to write. Spend time with family. Dream about designing. Is this what cancer patients mean when they say they feel blessed to have cancer? Or just my shallow interpretation?

Hanging out with Jesse and her kids, working on my book and blog, reading lots of books, napping every afternoon, watching HGTV/DIY—these things might sound totally unproductive to most people, something they might indulge in on vacation or over the weekend—and not that long ago I was one of them—but now I see that life isn’t necessarily about being productive in the traditional sense of the word.

I can be fulfilled without a career, a paycheck, a title. Yet I spent so many years feeling otherwise. (Yes, I am fortunate that my husband can support me—maybe not in the style to which we were accustomed when we had two incomes but we manage to pay our bills and eat out!)

Have my priorities shifted? Most certainly. I’m finding that the 50 t-shirts that I own are enough, especially since I’ve only worn 15 of them this entire summer. So no more time or money wasted on weekend trips to West Lebanon to buy even more clothes.

I hope this is just the beginning of that shift. That there are more changes to come.

Yesterday I stayed in my pajamas until 4 o’clock, working on my submission for my writing group tonight. It was a gorgeous day and yet I stayed on the couch, weighted down by my laptop, afraid that if I got dressed I would venture out of the house and end up embarrassed tonight at writing group. Which I will be anyway.

I’m still not comfortable with going public with my writing. (And that includes this blog.) It wasn’t very long ago that I would hide my writing from my husband. Yet I can’t realize my dream of being an author (meaning a published writer!) unless my work rises to the level where I am not only at ease with others reading my work but proud of what they will be reading. And it won’t do that all by itself.

Going public

Cancer, My Novel- Anne, Writing, Writing Group August 2, 2013 Comments: 3

I woke up at 2 in the morning for a bathroom break. Someone was thumping my chest. It took me a few moments to realize that it was me. My arm had fallen asleep and I was attempting to wake it up by hitting it against my chest.

The things we do to ourselves without realizing it. Thinking that someone else is doing them to us. That we are not the cause of our own problems, of our situation. That events just happen of their own volition.

I can always justify not spending time writing because the bills need to be paid, the laundry needs to be done, the dishwasher emptied. Hey, I can’t shirk those responsibilities now that I am no longer working. Sometimes I just don’t feel well enough to do more than lie on the couch and watch TV. I can always blame it on my cancer. Then I can go to my writing group with a reason (an excuse?) for why I’ve been neglecting Anne.

Yet I’ve always been able to force myself to power through projects. When I’ve had to. But not when I’ve wanted to. Wanting to have something done is not enough for me. I’ve always needed a deadline, a real deadline, not one that I’ve set for myself.

Last night at my writing group I committed to submitting next week. I am going to start with the beginning of Anne and work my way to the end. The end of what will be the second draft. Two down, how many more to go after that?

John suggested that I post my novel right here on my blog. WHAT??? That means going public with my writing, posting it on the Internet for the whole world to see (OK, so I only have 53 followers). Before I feel it is ready. Or before I am ready……

Just 250 words every other day. Yet it feels like a major commitment. As frightening as it is I think it’s a great idea. I’d love to hear what you think!

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